Tag Archives: Reason

Recent Posts and Updates

Because I am sometimes spread more thinly than others across the social media spectrum, I need to add in one of these aggregate posts to link over to articles you might have missed because they were not posted here on my blog. In order to maximize my ability to target other patients and caregivers, I have published quite a lot on LungCancer.net while reserving the space here on my blog for more personal or passionate material.

While I hope that my readers are keeping up with the wider range of my work and social comments either by following my author page on Facebook or reading my Twitter feed, it is still easy to miss new material in these over-saturated times.

So, without further ado, here are links to some of my recent material you might have missed. Don’t forget to option-click so that these links open in a new tab, making it easier to come back to this page for more clickety-clicking fun! Continue reading Recent Posts and Updates

The Overstayed Welcome

We all know — or we should all know — that lung cancer is one of the biggest killers in our society. With an estimated average of 433 people dying every day from some form of this disease, there is no question as to why it is considered such a horrifying diagnosis. Lung cancer kills more than any other cancer, and more than its three closest competitors in the cancer arena combined. If there were cancer cage matches, lung cancer would win virtually every time based on the sheer volume of its devastation and mayhem. Yet, in spite of receiving only a fraction of the research funding that other cancers get, a surprising number of treatments have emerged to help lung cancer patients outlive their initial prognosis.

But you have lung cancer! You’re expected to die. And, by the way, you’re expected to die quickly (and brutally). That is what the common narrative tells us.

Lung cancer treatment has made amazing bounds over the past decade. For a growing number of patients, living with Stage IV lung cancer is no longer an immediate death sentence, if a death sentence at all. For some of them, especially those diagnosed “earlier” in the Stage IV spectrum, while there are still a few months to alternate between treatments to find what works, or for those lucky enough to have an actionable mutation, even this advanced type of lung cancer can be treated as a chronic illness instead of a fatal one. Earlier and better diagnoses have led to younger and healthier patients having a chance to engage in this challenge before their cancer has beaten them down from within, and they have brought a new level of perseverance to the process. Continue reading The Overstayed Welcome

Radiation and Me, A Love Story

It all started with a pain in my back. I was a mess. Every day, the pain grew and spread until it ran down my entire left leg and shot up into my chest. What I had hoped might be a simple pinched nerve turned out to be the result of a new metastasis in the muscle of my lower back, conveniently pressing gently up against the sciatic nerve like a feather made of barbed wire attached to a cattle prod.

To treat this nasty beast, the only practical solution was to zap it with radiation — something that I could barely wait to begin doing. By the time this was presented as an option, I was in such agony that surgery would have been appealing. Radiation, by comparison to virtually anything else, sounded like a relief. Continue reading Radiation and Me, A Love Story

Feeling Defeated

Everybody has days like this sometimes.

I suppose this is a good time for a disclaimer. My mother probably should not read this post. So, you got that Mom? Go ahead and read something about positivity.
Like I was saying, everybody has days like this sometimes. It isn’t unique to cancer patients either. There are days, every so often, when anyone might wake up and just feel like it’s too much. Like they can’t go on. Like they’d rather simply not try.

Continue reading Feeling Defeated

Terms and Conditions: Language Matters

Here’s a term that is often misused or misunderstood, because it is used pejoratively, to insinuate something other than what it actually means:
 
Allopathic Medicine.

Continue reading Terms and Conditions: Language Matters

Critical Thinking and Cancer Headlines

I have a predilection for skepticism, especially with regard to hyperbolic medical claims about cancer treatment. Since my diagnosis, I have received many suggestions for things to try and I have been pointed to countless articles about amazing new treatments (and plenty of old ones). Each time, there is a flutter of hope, and I want very badly to see or hear a new piece of information that is going to change the cancer treatment paradigm forever. I think that most patients and caregivers feel that way. Yet, the vast majority of information on “new” or “revolutionary” treatments being passed around via the Internet seems to fall somewhere between misrepresentation and outright fabrication.

Over the past months, I have written a number of short articles on this subject for LungCancer.net — here are links to a few of them:

Sifting Through C-Word Headlines

Fighting Misinformation and Fake News About Lung Cancer

Health Claims, Water, and the Internet

As longtime readers know, I try to encourage critical thinking and hope to present a good example of that approach to information on cancer treatment options. If you haven’t already, I encourage you to read and share my series of Wellness Warrior posts.  (You can type the phrase in the search box for easy access.)

It takes a concerted effort, sometimes, to cut through the quagmire of nonsense out there. But if we all make that effort, together, to read beyond headlines before reacting and to vet our sources before we share, it will help to reshape the whole narrative around cancer as we know it.

 


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Advocacy, Messaging, and Outreach

As a “Lung Cancer Advocate,” writing for multiple sites is a way to reach and presumably help more people. That is why I sometimes take a break from my blog and contribute to discussion sites like Quora or write for communities like LungCancer.net. I participate on sites like Patients Like Me, Health Unlocked, and Cancer Support Community. I also publish my audio and video blog, The Deep Breath, for subscribers on Patreon (there is a link for the RSS feed for the audio-only episodes). All in, it sometimes seems like I am spread a little thin.

But it is important to reach out in many ways, especially, it seems, when Lung Cancer Awareness Month still seems neglected in the wake of the Breast Cancer Awareness Month juggernaut that is Pink Ribbons and merchandising and organized events at every turn. Not to mention that there are more causes seeking awareness than there are months, and the limited color options for ribbons are often appropriated for multiple causes (sometimes even simultaneously).  Continue reading Advocacy, Messaging, and Outreach

Dropping the Cancer Bomb

Dropping a bomb or sabotage — what does it feel like when you get the news of someone’s cancer second hand or by accident? That is what I have been pondering this afternoon since offhandedly mentioning my blog address in conversation earlier, without pausing to put its content in context. Since I don’t look like I am sick, a non-subtle reveal that I have lung cancer can be like a slap across the face. It’s a shock. One I deliver, I expect, far more often than I intend to.

I’ve been told on more than one occasion that it should not be my problem, that I should not feel obligated to hold somebody’s hand when I tell them about my “health condition,” and that I cannot be responsible for another person’s reaction to my disease. But I also consider the reality that most people know someone, quite often family or a close friend, who has struggled with a form of cancer. Depending on where you get your statistics the numbers vary slightly, but no matter which source you use the bottom line is that over a third of us develop some form of cancer. That means out of every ten people you know, three or four of them are likely to have cancer at some point in their life. It is no surprise, therefore, that on my street alone I know of seven patients — and I should stress that those are only the ones I know of within less than two blocks, not necessarily the absolute total for the street. Also, I’m not particularly social or friendly, in case that is relevant to knowing what neighbors are up to. In other words, there are probably more of us on this stretch already.  Continue reading Dropping the Cancer Bomb

Some Thoughts on Death and Dying

The past few days have been interesting, in the way that might make a person both sad and angry, and hopefully also touch into a compassionate spot. After a lot of attention had been given to the hurricanes that battered our nation last month, highlighting both the devastation of nature and human resilience, it seemed that we were due a period of celebration. Instead, music icon, Tom Petty, died (prematurely reported, retracted, and ultimately, with some finality, reported again). And just before that, on the last night of a big music festival in Las Vegas, a so-called “lone wolf” gunman managed to use a stash of roughly 20 weapons (at least some of which were modified to be more deadly) to kill in the neighborhood of 60 innocent people, wounding hundreds of others. He did this from a hotel room in a very fancy casino across the street, using long-range rifles. It’s enough to get a person ruminating on mortality. As if living with stage 4 lung cancer wasn’t enough.

Before I get too self-indulgent, however, I should put my thoughts into perspective. Death doesn’t bother me so much; I do not hold onto a fear of dying and I cannot recall a time when I did. But I do have a deep and consistent anger about enabled murder, preventable deaths and injuries (both physical and psychological), and the lack of public will to address the underlying issues that allow such things to continue happening. And in that regard, I suppose, I do have a fear of getting shot. In almost 50 years, I’ve been lucky enough to have been directly threatened with a gun only once — but I’ve still been threatened with a gun. It is hard not to think about these things when a mass shooting happens just a few blocks away from where you had been lying poolside about a month earlier. Continue reading Some Thoughts on Death and Dying

Interview With Radiation Therapist Turned Stage IV Lung Cancer Patient

I meet a lot of interesting people through my lung cancer support group. Most of them are on some form of chemotherapy. A few have tried immunotherapy. Some targeted drugs have been in the mix, along with surgery and radiation. The one commonality between them is their optimistic perseverance. But it isn’t rooted in blind optimism or faith — the whole point of the group is to share perspectives and experiences, gathering useful knowledge in the process. We all come with our own perspectives that inform our decisions and influence how we share, most of us having begun as (more or less surprised) patients that have evolved into advocates. Once in a while, a patient arrives with multiple perspectives built-in, hardwired to see her situation from both sides of the exam table.

And if I’m really lucky, she lets me interview her for my podcast:


 

If this post resonates with you, please consider supporting my work through a monthly subscription to my feed on Patreon, or a one-time donation through PayPal. Follow me on TwitterFacebook, Tumbler and many other fancy social sites or apps. Please share my posts to groups you are involved with on Reddit or Google+ or anywhere else that you feel it will help or enlighten or inspire another reader. (Sharing buttons are below the post!)

Thank you!